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Effect of caregiver burden on the quality of life of informal caregivers of people with cystic fibrosis in the United Kingdom: a cross-sectional study
Effect of caregiver burden on the quality of life of informal caregivers of people with cystic fibrosis in the United Kingdom: a cross-sectional study
Informal carers of people with cystic fibrosis (PwCF) play a critical role in care provision, yet the impact of caregiving...
Self-reported quality of recovery after radical prostatectomy—a prospective cohort study
Self-reported quality of recovery after radical prostatectomy—a prospective cohort study
The Quality of Recovery-15 questionnaire (QoR-15) has been developed to assess patient-reported recovery 24 h aft...
Quality of patient-reported outcome measures and treatment effects: a review of orthopaedic randomized trials
Quality of patient-reported outcome measures and treatment effects: a review of orthopaedic randomized trials
This study assessed how poor-quality patients reported outcome measures (PROMS) influence treatment effect estimates in ra...
Psychometric properties of the ICECAP-SCM capability-wellbeing measure in specialist palliative care units in Austria
Psychometric properties of the ICECAP-SCM capability-wellbeing measure in specialist palliative care units in Austria
Patient-reported outcome measures (PROMs) with robust psychometric properties are key for healthcare and resource allocati...
Aphasia-specific or generic outcomes? a comparison of two health-related quality of life instruments for economic evaluations of aphasia treatments
Aphasia-specific or generic outcomes? a comparison of two health-related quality of life instruments for economic evaluations of aphasia treatments
Economic evaluations based on health-related quality of life (HRQOL) inform healthcare decisions. The generic EuroQol 5-Di...
Putting CATs and item banks to work: How to construct predictive and sensitive PROMIS screeners for use in ambulatory oncology
Putting CATs and item banks to work: How to construct predictive and sensitive PROMIS screeners for use in ambulatory oncology
Incorporating PROMs into routine clinical care comes with numerous challenges, including pressure to move patients through...
A novel CAT method for QoL screening: proof-of-principle study with comparisons to standard methods
A novel CAT method for QoL screening: proof-of-principle study with comparisons to standard methods
This proof-of-principle study investigated a novel Computer Adaptive Testing (CAT) method termed Latent-class and Sum scor...
Optimizing presentation formats for SF-6Dv2 health status valuation: a qualitative study using cognitive interviews
Optimizing presentation formats for SF-6Dv2 health status valuation: a qualitative study using cognitive interviews
The SF-6Dv2 health status valuation using the discrete choice experiment (DCE) method requires effective presentation stra...
Does context matter? A discrete choice experiment investigating the impact of palliative context on EQ-5D-5L health state valuation
Does context matter? A discrete choice experiment investigating the impact of palliative context on EQ-5D-5L health state valuation
Ensuring the values applied in health technology assessment of palliative care accurately reflect the palliative context i...
Validity evidence for the use of the Pediatric Quality of Life Inventory, the Revised Children’s Anxiety and Depression Scale-25, and the Columbia-Suicide Severity Rating Scale in measurement-based care in intensive outpatient child and adolescent mental health care
Validity evidence for the use of the Pediatric Quality of Life Inventory, the Revised Children’s Anxiety and Depression Scale-25, and the Columbia-Suicide Severity Rating Scale in measurement-based care in intensive outpatient child and adolescent mental health care
We sought to evaluate the validity of the interpretations made on the scores from three patient-reported outcome measures ...
Challenges in interpreting individual-level changes in health-related quality of life in patients with glioma using minimally important differences (MIDs) and a 4-point Likert scale
Challenges in interpreting individual-level changes in health-related quality of life in patients with glioma using minimally important differences (MIDs) and a 4-point Likert scale
Interpretation of changes on the individual level is often based on minimally important differences (MIDs) developed on th...
Examining quality of life by recovery status among college students with a history of substance use
Examining quality of life by recovery status among college students with a history of substance use
Quality of Life (QoL) is a vital measure for individuals with chronic health concerns, including those with a history of s...
Association of healthy eating behaviours and comorbidity on quality of life among adults with beta-thalassemia major: a moderation analysis
Association of healthy eating behaviours and comorbidity on quality of life among adults with beta-thalassemia major: a moderation analysis
Adults with beta-thalassemia major (BTM) and comorbidities may experience poorer quality of life (QoL), while healthy diet...
Exploring subjective constructions of quality of life in patients, carers and the healthy general public: a Q-methodological study
Exploring subjective constructions of quality of life in patients, carers and the healthy general public: a Q-methodological study
To explore similarities and differences in perceptions of quality of life (QoL) outcome, among different groups of populat...
Translation, cultural adaptation, and validation of the Chinese standardized outcomes in nephrology–hemodialysis fatigue (C-SONG–HD fatigue) scale: a study of Chinese patients undergoing hemodialysis
Translation, cultural adaptation, and validation of the Chinese standardized outcomes in nephrology–hemodialysis fatigue (C-SONG–HD fatigue) scale: a study of Chinese patients undergoing hemodialysis
This study aimed to translate and culturally adapt the standardized outcomes in nephrology–hemodialysis fatigue (SON...
What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy
What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy
There are limited psychometric data on outcome measures for children with Developmental Epileptic Encephalopathies (DEEs),...
Health-related quality of life of people with heart failure in low- and middle-income countries: a systematic review and meta-analysis
Health-related quality of life of people with heart failure in low- and middle-income countries: a systematic review and meta-analysis
Heart failure is a global health concern and associated with poor health-related quality of life and increased mortality. ...
Using parameter perturbation to facilitate transparency in measure development
Using parameter perturbation to facilitate transparency in measure development
This work was supported by Environmental influences on Child Health Outcomes (ECHO) program, Office of The Director, Natio...
Influence of body mass index on health complains and life satisfaction
Influence of body mass index on health complains and life satisfaction
This research work investigates the influence of children’s weight status on well-being and school context in a samp...
Using a multi-stakeholder co-design process to develop a health service organisation-wide patient reported outcome measure collection system
Using a multi-stakeholder co-design process to develop a health service organisation-wide patient reported outcome measure collection system
Limited examples exist of successful Patient Reported Outcome Measure (PROM) implementation across an entire healthcare or...
Patient quality of life and caregiver experiences in ovarian cancer: How are they related?
Patient quality of life and caregiver experiences in ovarian cancer: How are they related?
Patients with ovarian cancer and their spousal caregivers report similarities in health-related quality of life (HRQoL) an...
Health outcomes before and during the COVID-19 pandemic in caregivers of service members and veterans with traumatic brain injury
Health outcomes before and during the COVID-19 pandemic in caregivers of service members and veterans with traumatic brain injury
To examine change in health-related quality of life (HRQOL) during the COVID-19 pandemic in caregivers of service members/...
Supportive care needs in Australian melanoma patients and caregivers: results from a quantitative cross-sectional survey
Supportive care needs in Australian melanoma patients and caregivers: results from a quantitative cross-sectional survey
This study aimed to investigate the supportive care needs of Australian melanoma patients and their caregivers to form the...
The early years: hirschsprung disease and health-related quality of life
The early years: hirschsprung disease and health-related quality of life
Chronic diseases are notorious in the way that they interfere with many aspects of a child’s development, and this h...
The Patient Generated Index (PGI) as an early-warning system for predicting brain health challenges: a prospective cohort study for people living with Human Immunodeficiency Virus (HIV)
The Patient Generated Index (PGI) as an early-warning system for predicting brain health challenges: a prospective cohort study for people living with Human Immunodeficiency Virus (HIV)
In research people are often asked to fill out questionnaires about their health and functioning and some of the questions...
Estimating the disutility of relapse in relapsing–remitting and secondary progressive multiple sclerosis using the EQ-5D-5L, AQoL-8D, EQ-5D-5L-psychosocial, and SF-6D: implications for health economic evaluation models
Estimating the disutility of relapse in relapsing–remitting and secondary progressive multiple sclerosis using the EQ-5D-5L, AQoL-8D, EQ-5D-5L-psychosocial, and SF-6D: implications for health economic evaluation models
Relapses are an important clinical feature of multiple sclerosis (MS) that result in temporary negative changes in quality...
Development and initial psychometric evaluation of a COVID-related psychosocial experiences questionnaire for cancer survivors
Development and initial psychometric evaluation of a COVID-related psychosocial experiences questionnaire for cancer survivors
Cancer survivors are at elevated risk of psychological problems related to COVID-19, yet no published measure adequately a...
Living well while providing support: validation of LTCQ-Carer for assessing informal carers’ quality of life
Living well while providing support: validation of LTCQ-Carer for assessing informal carers’ quality of life
Despite international policies to support the health and wellbeing of informal (family) caregivers, there is no consensus ...
Estimating meaningful change for The Impact of Weight on Self-Perception (IW-SP) questionnaire among people with type 2 diabetes
Estimating meaningful change for The Impact of Weight on Self-Perception (IW-SP) questionnaire among people with type 2 diabetes
The Impact of Weight on Self-perception Questionnaire (IW-SP) is a three-item patient-reported outcome measure (PROM) inst...
Association of body mass index from childhood to mid-adulthood with health-related quality of life in mid-adulthood
Association of body mass index from childhood to mid-adulthood with health-related quality of life in mid-adulthood
Most studies regarding the association of obesity with health-related quality of life (HRQoL) have assessed obesity at onl...
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