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Translation, cultural adaptation, and validation of the Chinese standardized outcomes in nephrology–hemodialysis fatigue (C-SONG–HD fatigue) scale: a study of Chinese patients undergoing hemodialysis
Translation, cultural adaptation, and validation of the Chinese standardized outcomes in nephrology–hemodialysis fatigue (C-SONG–HD fatigue) scale: a study of Chinese patients undergoing hemodialysis
This study aimed to translate and culturally adapt the standardized outcomes in nephrology–hemodialysis fatigue (SON...
What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy
What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy
There are limited psychometric data on outcome measures for children with Developmental Epileptic Encephalopathies (DEEs),...
Health-related quality of life of people with heart failure in low- and middle-income countries: a systematic review and meta-analysis
Health-related quality of life of people with heart failure in low- and middle-income countries: a systematic review and meta-analysis
Heart failure is a global health concern and associated with poor health-related quality of life and increased mortality. ...
Using parameter perturbation to facilitate transparency in measure development
Using parameter perturbation to facilitate transparency in measure development
This work was supported by Environmental influences on Child Health Outcomes (ECHO) program, Office of The Director, Natio...
Influence of body mass index on health complains and life satisfaction
Influence of body mass index on health complains and life satisfaction
This research work investigates the influence of children’s weight status on well-being and school context in a samp...
Using a multi-stakeholder co-design process to develop a health service organisation-wide patient reported outcome measure collection system
Using a multi-stakeholder co-design process to develop a health service organisation-wide patient reported outcome measure collection system
Limited examples exist of successful Patient Reported Outcome Measure (PROM) implementation across an entire healthcare or...
Patient quality of life and caregiver experiences in ovarian cancer: How are they related?
Patient quality of life and caregiver experiences in ovarian cancer: How are they related?
Patients with ovarian cancer and their spousal caregivers report similarities in health-related quality of life (HRQoL) an...
Health outcomes before and during the COVID-19 pandemic in caregivers of service members and veterans with traumatic brain injury
Health outcomes before and during the COVID-19 pandemic in caregivers of service members and veterans with traumatic brain injury
To examine change in health-related quality of life (HRQOL) during the COVID-19 pandemic in caregivers of service members/...
Supportive care needs in Australian melanoma patients and caregivers: results from a quantitative cross-sectional survey
Supportive care needs in Australian melanoma patients and caregivers: results from a quantitative cross-sectional survey
This study aimed to investigate the supportive care needs of Australian melanoma patients and their caregivers to form the...
The early years: hirschsprung disease and health-related quality of life
The early years: hirschsprung disease and health-related quality of life
Chronic diseases are notorious in the way that they interfere with many aspects of a child’s development, and this h...
The Patient Generated Index (PGI) as an early-warning system for predicting brain health challenges: a prospective cohort study for people living with Human Immunodeficiency Virus (HIV)
The Patient Generated Index (PGI) as an early-warning system for predicting brain health challenges: a prospective cohort study for people living with Human Immunodeficiency Virus (HIV)
In research people are often asked to fill out questionnaires about their health and functioning and some of the questions...
Estimating the disutility of relapse in relapsing–remitting and secondary progressive multiple sclerosis using the EQ-5D-5L, AQoL-8D, EQ-5D-5L-psychosocial, and SF-6D: implications for health economic evaluation models
Estimating the disutility of relapse in relapsing–remitting and secondary progressive multiple sclerosis using the EQ-5D-5L, AQoL-8D, EQ-5D-5L-psychosocial, and SF-6D: implications for health economic evaluation models
Relapses are an important clinical feature of multiple sclerosis (MS) that result in temporary negative changes in quality...
Development and initial psychometric evaluation of a COVID-related psychosocial experiences questionnaire for cancer survivors
Development and initial psychometric evaluation of a COVID-related psychosocial experiences questionnaire for cancer survivors
Cancer survivors are at elevated risk of psychological problems related to COVID-19, yet no published measure adequately a...
Living well while providing support: validation of LTCQ-Carer for assessing informal carers’ quality of life
Living well while providing support: validation of LTCQ-Carer for assessing informal carers’ quality of life
Despite international policies to support the health and wellbeing of informal (family) caregivers, there is no consensus ...
Estimating meaningful change for The Impact of Weight on Self-Perception (IW-SP) questionnaire among people with type 2 diabetes
Estimating meaningful change for The Impact of Weight on Self-Perception (IW-SP) questionnaire among people with type 2 diabetes
The Impact of Weight on Self-perception Questionnaire (IW-SP) is a three-item patient-reported outcome measure (PROM) inst...
Association of body mass index from childhood to mid-adulthood with health-related quality of life in mid-adulthood
Association of body mass index from childhood to mid-adulthood with health-related quality of life in mid-adulthood
Most studies regarding the association of obesity with health-related quality of life (HRQoL) have assessed obesity at onl...
A scoping review of the use of visual tools and adapted easy-read approaches in Quality-of-Life instruments for adults
A scoping review of the use of visual tools and adapted easy-read approaches in Quality-of-Life instruments for adults
Self-Reporting using traditional text-based Quality-of-Life (QoL) instruments can be difficult for people living with sens...
Feasibility of self-reported health related quality of life assessment with older people in residential care: insights from the application of eye tracking technology
Feasibility of self-reported health related quality of life assessment with older people in residential care: insights from the application of eye tracking technology
Increasingly there are calls to routinely assess the health-related quality of life (HRQoL) of older people receiving aged...
Translation and validation of a Chinese version of the pancreatitis quality of life instrument (PANQOLI) in patients with chronic pancreatitis
Translation and validation of a Chinese version of the pancreatitis quality of life instrument (PANQOLI) in patients with chronic pancreatitis
Chronic pancreatitis (CP) is a chronic fibroinflammatory pancreatic disease that severely impacts patients’ quality ...
Change in health-related quality of life and functional disability over time post-concussion in youth
Change in health-related quality of life and functional disability over time post-concussion in youth
Concussions can have detrimental on children’s cognitive, emotional, behavioral, and/or social functioning. We sough...
Health-related quality of life and associated factors in elderly individuals with dyslipidemia in rural Northern China
Health-related quality of life and associated factors in elderly individuals with dyslipidemia in rural Northern China
The purpose of the study was to investigate health-related quality of life (HRQOL) and its associated factors among elderl...
Comparative effectiveness of verbal instruction versus video-based education (VIVid) among family caregivers for improving the quality of life in advanced head and neck cancer patients receiving palliative care in Eastern India: a randomized controlled trial
Comparative effectiveness of verbal instruction versus video-based education (VIVid) among family caregivers for improving the quality of life in advanced head and neck cancer patients receiving palliative care in Eastern India: a randomized controlled trial
To determine if video-based educational intervention compared to the standard verbal guidelines, provided to caregivers on...
Profiles of subjective well-being among people living with HIV during the COVID-19 pandemic
Profiles of subjective well-being among people living with HIV during the COVID-19 pandemic
The aim of our study was to examine subjective well-being (SWB) profiles and their sociodemographic and clinical correlate...
Development and evaluation of the Norwegian Fatigue Characteristics and Interference Measure (FCIM) for stroke survivors: cognitive interviews and Rasch analysis
Development and evaluation of the Norwegian Fatigue Characteristics and Interference Measure (FCIM) for stroke survivors: cognitive interviews and Rasch analysis
There is need for a comprehensive measure of post-stroke fatigue with sound measurement properties. This study aimed to de...
Impaired health-related quality of life in the HCV cure era: who is concerned? (ANRS CO22 HEPATHER French cohort)
Impaired health-related quality of life in the HCV cure era: who is concerned? (ANRS CO22 HEPATHER French cohort)
Hepatitis C virus (HCV) cure after treatment with direct-acting antivirals (DAAs) can improve health-related quality of li...
Understanding the measurement relationship between EQ-5D-5L, PROMIS-29 and PROPr
Understanding the measurement relationship between EQ-5D-5L, PROMIS-29 and PROPr
Many generic patient-reported instruments are available for the measurement of health outcomes, including EQ-5D-5L, and th...
Health-related quality of life profiles in adolescents and young adults with chronic conditions
Health-related quality of life profiles in adolescents and young adults with chronic conditions
To assess health-related quality of life (HRQOL) among adolescents and young adults (AYAs) with chronic conditions. AYAs (...
Associations between treatments, comorbidities and multidimensional aspects of quality of life among patients with advanced cancer in the Netherlands—a 2017–2020 multicentre cross-sectional study
Associations between treatments, comorbidities and multidimensional aspects of quality of life among patients with advanced cancer in the Netherlands—a 2017–2020 multicentre cross-sectional study
To investigate associations between quality of life (QoL) and 1) immunotherapy and other cancer treatments received three ...
Determinants of health-related quality of life (HRQoL) among homeless individuals during the COVID-19 pandemic
Determinants of health-related quality of life (HRQoL) among homeless individuals during the COVID-19 pandemic
Thus far, there is very limited knowledge regarding homeless individuals during the COVID-19 pandemic, particularly relate...
Social factors of health-related quality of life in older adults: a multivariable analysis
Social factors of health-related quality of life in older adults: a multivariable analysis
The objective of the analysis was to examine the relationships between sociodemographic, socioeconomic, psychosocial, and ...
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