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Circadian preference and quality of life in adults with autism spectrum disorder: a Brazilian cross-sectional self-reported survey
Circadian preference and quality of life in adults with autism spectrum disorder: a Brazilian cross-sectional self-reported survey
Adults with Autism Spectrum Disorder (ASD) often experience significant challenges that affect their quality of life (QoL)...
Biases in the measurement of health-related quality of life in the EQ-5D-5L among those with serious physical traumatic injuries: the ADVANCE cohort study
Biases in the measurement of health-related quality of life in the EQ-5D-5L among those with serious physical traumatic injuries: the ADVANCE cohort study
Physical traumatic injuries are likely to impact on a person’s Health-Related Quality of Life (HRQOL). We present da...
Quality of life surveys developed or validated in children or youth with special healthcare needs: a scoping review
Quality of life surveys developed or validated in children or youth with special healthcare needs: a scoping review
Current survey measures of quality of life (QoL) may not be sufficient to describe domains that are important to children ...
The impact of testing positive versus negative for COVID-19 on health-related quality of life: cross-sectional evidence from the Alberta post-COVID-19 follow-up survey
The impact of testing positive versus negative for COVID-19 on health-related quality of life: cross-sectional evidence from the Alberta post-COVID-19 follow-up survey
The novel Coronavirus Disease 2019 (COVID-19) can have lasting physical and psychological outcomes, though little is known...
Understanding the burden of congenital cytomegalovirus (cCMV) infection: concept elicitation interviews with caregivers of pediatric cCMV patients and development of a conceptual disease model
Understanding the burden of congenital cytomegalovirus (cCMV) infection: concept elicitation interviews with caregivers of pediatric cCMV patients and development of a conceptual disease model
Congenital cytomegalovirus (cCMV) is the most common congenital infection worldwide. cCMV can result in long-term impairme...
Effects of nonpharmacological interventions on post-stroke quality of life: a systematic review, meta-analysis, and meta-regression
Effects of nonpharmacological interventions on post-stroke quality of life: a systematic review, meta-analysis, and meta-regression
Stroke remains a leading cause of long-term disability, with survivors experiencing a substantial decline in their health-...
Understanding decision-making strategies in discrete choice experiment tasks when valuing health states that include duration, a cognitive interview study with Australian adults
Understanding decision-making strategies in discrete choice experiment tasks when valuing health states that include duration, a cognitive interview study with Australian adults
This study examined how participants engage with Discrete Choice Experiments (DCE) with duration tasks for valuing health ...
Cancer-specific or generic preference-based measures in oncology? A validity comparison across six commonly diagnosed cancers
Cancer-specific or generic preference-based measures in oncology? A validity comparison across six commonly diagnosed cancers
This study aimed to evaluate the validity of both generic and cancer-specific preference-based measures (PBMs) in patients...
The semantic differential questionnaire format warrants consideration for use in healthcare settings
The semantic differential questionnaire format warrants consideration for use in healthcare settings
Semantic differential scales, in which respondents rate their relative agreement between two opposing statements, are rare...
Impact of body weight on quality of life trajectories following metabolic bariatric surgery in individuals with obesity: a longitudinal study
Impact of body weight on quality of life trajectories following metabolic bariatric surgery in individuals with obesity: a longitudinal study
Patients with obesity who undergo metabolic bariatric surgery (MBS) may experience changes in health-related quality of li...
Mapping the neglected topic in head and neck paraganglioma research: a PRISMA scoping review on quality of life
Mapping the neglected topic in head and neck paraganglioma research: a PRISMA scoping review on quality of life
Paragangliomas in the head and neck (HNPGL) are rare slow growing neuro-endocrine tumors. The impact of various treatment ...
Additional interventions for enhancing the quality-of-life of older adults using hearing aids: a systematic review and narrative synthesis
Additional interventions for enhancing the quality-of-life of older adults using hearing aids: a systematic review and narrative synthesis
Hearing loss in older adults substantially affects quality of life. Although hearing aids improve hearing, their effects v...
Post-COVID-19 physical and mental quality of life: a latent profile analysis and predictive factors
Post-COVID-19 physical and mental quality of life: a latent profile analysis and predictive factors
The long-term effects of SARS-CoV-2 infection are increasingly recognized, with heterogeneous physical and psychological s...
Selecting the optimal MIC for five patient-reported outcome measures in patients with upper extremity injuries, using a systematic search and step-by-step decision tree
Selecting the optimal MIC for five patient-reported outcome measures in patients with upper extremity injuries, using a systematic search and step-by-step decision tree
To illustrate how optimal MIC values can be selected for PROMs using a systematic step-by-step approach. A systematic sear...
Effect of caregiver burden on the quality of life of informal caregivers of people with cystic fibrosis in the United Kingdom: a cross-sectional study
Effect of caregiver burden on the quality of life of informal caregivers of people with cystic fibrosis in the United Kingdom: a cross-sectional study
Informal carers of people with cystic fibrosis (PwCF) play a critical role in care provision, yet the impact of caregiving...
Self-reported quality of recovery after radical prostatectomy—a prospective cohort study
Self-reported quality of recovery after radical prostatectomy—a prospective cohort study
The Quality of Recovery-15 questionnaire (QoR-15) has been developed to assess patient-reported recovery 24 h aft...
Quality of patient-reported outcome measures and treatment effects: a review of orthopaedic randomized trials
Quality of patient-reported outcome measures and treatment effects: a review of orthopaedic randomized trials
This study assessed how poor-quality patients reported outcome measures (PROMS) influence treatment effect estimates in ra...
Psychometric properties of the ICECAP-SCM capability-wellbeing measure in specialist palliative care units in Austria
Psychometric properties of the ICECAP-SCM capability-wellbeing measure in specialist palliative care units in Austria
Patient-reported outcome measures (PROMs) with robust psychometric properties are key for healthcare and resource allocati...
Aphasia-specific or generic outcomes? a comparison of two health-related quality of life instruments for economic evaluations of aphasia treatments
Aphasia-specific or generic outcomes? a comparison of two health-related quality of life instruments for economic evaluations of aphasia treatments
Economic evaluations based on health-related quality of life (HRQOL) inform healthcare decisions. The generic EuroQol 5-Di...
Putting CATs and item banks to work: How to construct predictive and sensitive PROMIS screeners for use in ambulatory oncology
Putting CATs and item banks to work: How to construct predictive and sensitive PROMIS screeners for use in ambulatory oncology
Incorporating PROMs into routine clinical care comes with numerous challenges, including pressure to move patients through...
A novel CAT method for QoL screening: proof-of-principle study with comparisons to standard methods
A novel CAT method for QoL screening: proof-of-principle study with comparisons to standard methods
This proof-of-principle study investigated a novel Computer Adaptive Testing (CAT) method termed Latent-class and Sum scor...
Optimizing presentation formats for SF-6Dv2 health status valuation: a qualitative study using cognitive interviews
Optimizing presentation formats for SF-6Dv2 health status valuation: a qualitative study using cognitive interviews
The SF-6Dv2 health status valuation using the discrete choice experiment (DCE) method requires effective presentation stra...
Does context matter? A discrete choice experiment investigating the impact of palliative context on EQ-5D-5L health state valuation
Does context matter? A discrete choice experiment investigating the impact of palliative context on EQ-5D-5L health state valuation
Ensuring the values applied in health technology assessment of palliative care accurately reflect the palliative context i...
Validity evidence for the use of the Pediatric Quality of Life Inventory, the Revised Children’s Anxiety and Depression Scale-25, and the Columbia-Suicide Severity Rating Scale in measurement-based care in intensive outpatient child and adolescent mental health care
Validity evidence for the use of the Pediatric Quality of Life Inventory, the Revised Children’s Anxiety and Depression Scale-25, and the Columbia-Suicide Severity Rating Scale in measurement-based care in intensive outpatient child and adolescent mental health care
We sought to evaluate the validity of the interpretations made on the scores from three patient-reported outcome measures ...
Challenges in interpreting individual-level changes in health-related quality of life in patients with glioma using minimally important differences (MIDs) and a 4-point Likert scale
Challenges in interpreting individual-level changes in health-related quality of life in patients with glioma using minimally important differences (MIDs) and a 4-point Likert scale
Interpretation of changes on the individual level is often based on minimally important differences (MIDs) developed on th...
Examining quality of life by recovery status among college students with a history of substance use
Examining quality of life by recovery status among college students with a history of substance use
Quality of Life (QoL) is a vital measure for individuals with chronic health concerns, including those with a history of s...
Association of healthy eating behaviours and comorbidity on quality of life among adults with beta-thalassemia major: a moderation analysis
Association of healthy eating behaviours and comorbidity on quality of life among adults with beta-thalassemia major: a moderation analysis
Adults with beta-thalassemia major (BTM) and comorbidities may experience poorer quality of life (QoL), while healthy diet...
Exploring subjective constructions of quality of life in patients, carers and the healthy general public: a Q-methodological study
Exploring subjective constructions of quality of life in patients, carers and the healthy general public: a Q-methodological study
To explore similarities and differences in perceptions of quality of life (QoL) outcome, among different groups of populat...
Translation, cultural adaptation, and validation of the Chinese standardized outcomes in nephrology–hemodialysis fatigue (C-SONG–HD fatigue) scale: a study of Chinese patients undergoing hemodialysis
Translation, cultural adaptation, and validation of the Chinese standardized outcomes in nephrology–hemodialysis fatigue (C-SONG–HD fatigue) scale: a study of Chinese patients undergoing hemodialysis
This study aimed to translate and culturally adapt the standardized outcomes in nephrology–hemodialysis fatigue (SON...
What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy
What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy
There are limited psychometric data on outcome measures for children with Developmental Epileptic Encephalopathies (DEEs),...
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