Sung H, Ferlay J, Siegel RL, Laversanne M, Soerjomataram I, Jemal A, et al. Global cancer statistics 2020: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries. CA Cancer J Clin. 2021;71:209–49. https://doi.org/10.3322/caac.21660.

Article  PubMed  CAS  Google Scholar 

Johnson DE, Burtness B, Leemans CR, Lui VWY, Bauman JE, Grandis JR. Head and neck squamous cell carcinoma. Nat Rev Dis Prim 2020;6. https://doi.org/10.1038/s41572-020-00224-3.

Barsouk A, Aluru JS, Rawla P, Saginala K, Barsouk A. Epidemiology, risk factors, and prevention of head and neck squamous cell carcinoma. Med Sci. 2023;11: 42. https://doi.org/10.3390/medsci11020042.

Article  CAS  Google Scholar 

Hammarstedt L, Lindquist D, Dahlstrand H, Romanitan M, Onelöv L, Joneberg J, et al. Human papillomavirus as a risk factor for the increase in incidence of tonsillar cancer. Int J Cancer. 2006;119:2620–3. https://doi.org/10.1002/ijc.22177.

Article  PubMed  CAS  Google Scholar 

Chaturvedi AK, Engels EA, Pfeiffer RM, Hernandez BY, Xiao W, Kim E, et al. Human papillomavirus and rising oropharyngeal cancer incidence in the United States. J Clin Oncol. 2011;29:4294–301. https://doi.org/10.1200/JCO.22.02625.

Article  PubMed  PubMed Central  CAS  Google Scholar 

Osazuwa-Peters N, Simpson MC, Massa ST, Adjei Boakye E, Antisdel JL, Varvares MA. 40-year incidence trends for oropharyngeal squamous cell carcinoma in the United States. Oral Oncol. 2017;74:90–7. https://doi.org/10.1016/j.oraloncology.2017.09.015.

Article  PubMed  Google Scholar 

Thompson-Harvey A, Yetukuri M, Hansen AR, Simpson MC, Adjei Boakye E, Varvares MA, et al. Rising incidence of late-stage head and neck cancer in the United States. Cancer. 2020;126:1090–101. https://doi.org/10.1002/cncr.32583.

Article  PubMed  Google Scholar 

Trotti A, Pajak TF, Gwede CK, Paulus R, Cooper J, Forastiere A, et al. TAME: development of a new method for summarising adverse events of cancer treatment by the radiation therapy oncology group. Lancet Oncol. 2007;8:613–24. https://doi.org/10.1016/S1470-2045(07)70144-4.

Article  PubMed  Google Scholar 

Nilsen ML, Belsky MA, Scheff N, Johnson JT, Zandberg DP, Skinner H, et al. Late and long-term treatment-related effects and survivorship for head and neck cancer patients. Curr Treat Options Oncol. 2020. https://doi.org/10.1007/s11864-020-00797-x.

Article  PubMed  Google Scholar 

Mady LJ, Lyu L, Owoc MS, Peddada SD, Thomas TH, Sabik LM, et al. Understanding financial toxicity in head and neck cancer survivors. Oral Oncol. 2019;95:187–93. https://doi.org/10.1016/j.oraloncology.2019.06.023.

Article  PubMed  Google Scholar 

Baddour K, Fadel M, Zhao M, Corcoran M, Owoc MS, Thomas TH, et al. The cost of cure: examining objective and subjective financial toxicity in head and neck cancer survivors. Head Neck. 2021;43:3062–75. https://doi.org/10.1002/hed.26801.

Article  PubMed  PubMed Central  Google Scholar 

Rosi-Schumacher M, Patel S, Phan C, Goyal N. Understanding financial toxicity in patients with head and neck cancer: a systematic review. Clin Med Insights Oncol. 2023. https://doi.org/10.1177/11795549221147730.

Article  PubMed  PubMed Central  Google Scholar 

Kanatas A, Lowe D, Rogers SN. Health-related quality of life at 3 months following head and neck cancer treatment is a key predictor of longer-term outcome and of benefit from using the patient concerns inventory. Cancer Med. 2022;11:1879–90. https://doi.org/10.1002/cam4.4558.

Article  PubMed  PubMed Central  Google Scholar 

Massa ST, Osazuwa-Peters N, AdjeiBoakye E, Walker RJ, Ward GM. Comparison of the Financial Burden of Survivors of Head and Neck Cancer with Other Cancer Survivors. JAMA Otolaryngol - Head Neck Surg. 2019;63110:239–49. https://doi.org/10.1001/jamaoto.2018.3982.

Article  Google Scholar 

Hwang E, Johnson-Obaseki S, McDonald JT, Connell C, Corsten M. Incidence of head and neck cancer and socioeconomic status in Canada from 1992 to 2007. Oral Oncol. 2013;49:1072–6. https://doi.org/10.1016/j.oraloncology.2013.08.002.

Article  PubMed  Google Scholar 

Cohen EEW, LaMonte SJ, Erb NL, Beckman KL, Sadeghi N, Hutcheson KA, et al. American Cancer Society head and neck cancer survivorship care guideline. CA Cancer J Clin. 2016;66:203–39. https://doi.org/10.3322/caac.21343.

Article  PubMed  Google Scholar 

Jacobson JJ, Epstein JB, Eichmiller FC, Gibson TB, GiS C, Vogtmann E, et al. The cost burden of oral, oral pharyngeal, and salivary gland cancers in three groups: commercial insurance, Medicare, and Medicaid. Head Neck Oncol. 2012;4:15. https://doi.org/10.1186/1758-3284-4-15.

Article  PubMed  PubMed Central  Google Scholar 

Dohopolski MJ, Diao K, Hutcheson KA, Akhave NS, Goepfert RP, He W, et al. Long-term patient-reported outcomes in a population-based cohort following radiotherapy vs surgery for oropharyngeal cancer. JAMA Otolaryngol - Head Neck Surg. 2023;149:697–707. https://doi.org/10.1001/jamaoto.2023.1323.

Article  PubMed  PubMed Central  Google Scholar 

Verdonck-de Leeuw IM, Korsten LHA, van Nieuwenhuizen A, Baatenburg de Jong RJ, Brakenhoff RH, Buffart LM, et al. The course of health-related quality of life in the first 2 years after a diagnosis of head and neck cancer: the role of personal, clinical, psychological, physical, social, lifestyle, disease-related, and biological factors. Support Care Cancer. 2023;31:458. https://doi.org/10.1007/s00520-023-07918-w.

Article  PubMed  PubMed Central  Google Scholar 

Goyal N, Day A, Epstein J, Goodman J, Graboyes E, Jalisi S, et al. Head and neck cancer survivorship consensus statement from the American Head and Neck Society. Laryngoscope Investig Otolaryngol. 2022;7:70–92. https://doi.org/10.1002/lio2.702.

Article  PubMed  Google Scholar 

Nekhlyudov L, Lacchetti C, Davis NB, Garvey TQ, Goldstein DP, Nunnink JC, et al. Head and neck cancer survivorship care guideline: American society of clinical oncology clinical practice guideline endorsement of the American cancer society guideline. J Clin Oncol. 2017;35:1606–21. https://doi.org/10.1200/JCO.2016.71.8478.

Article  PubMed  Google Scholar 

Mollica MA, McWhirter G, Tonorezos E, Fenderson J, Freyer DR, Jefford M, et al. Developing national cancer survivorship standards to inform quality of care in the United States using a consensus approach. J Cancer Surviv. 2024. https://doi.org/10.1007/s11764-024-01602-6.

Article  PubMed  PubMed Central  Google Scholar 

Cognetti DM, Villaflor VM, Fakhry C, Miller MC, Malloy KM. Survivorship support in head and neck cancer: American Head and Neck Society survey. Head Neck. 2020;42:939–44. https://doi.org/10.1002/hed.26066.

Article  PubMed  Google Scholar 

Grant, Marcia, Economou, Denice, Ferrell, Betty, Bhatia S. Preparing professional staff to care for cancer survivors. J Cancer Surviv 2007;1:98–106. https://doi.org/10.1007/s11764-007-0008-z.Preparing.

Amin W, Kang HP, Egloff AM, Singh H, Trent K, Ridge-Hetrick J, et al. An informatics supported web-based data annotation and query tool to expedite translational research for head and neck malignancies. BMC Cancer. 2009;9:1–17. https://doi.org/10.1186/1471-2407-9-396.

Article  CAS  Google Scholar 

Nilsen ML, Clump DA, Kubik M, Losego K, Mrozek A, Pawlowicz E, et al. Prevision of multidisciplinary head and neck cancer survivorship care during the 2019 novel coronavirus pandemic. Head Neck. 2020;42:1668–73. https://doi.org/10.1002/hed.26256.

Article  PubMed  PubMed Central  Google Scholar 

Walker K, Herman M (n.d.) tidycensus: Load US Census Boundary and Attribute Data as “tidyverse” and ’sf’-Ready Data Frames. R Packag Version 165. https://walker-data.com/tidycensus/.

Kind AJH, Buckingham WR. Making neighborhood-disadvantage metrics accessible— the Neighborhood Atlas. N Engl J Med. 2018;378:2456–8.

Article  PubMed  PubMed Central  Google Scholar 

rural-urban Commuting Area Codes. Econ Res Serv US Dep Agric (n.d.) https://www.ers.usda.gov/data-products/rural-urban-commuting-area-codes/ (Accessed Feb 1, 2024).

Straub JM, New J, Hamilton CD, Lominska C, Shnayder Y, Thomas SM. Radiation-induced fibrosis: mechanisms and implications for therapy. J Cancer Res Clin Oncol. 2015;141:1985–94. https://doi.org/10.1007/s00432-015-1974-6.

Article  PubMed  PubMed Central  CAS  Google Scholar 

Stubblefield MD. Radiation fibrosis syndrome: neuromuscular and musculoskeletal complications in cancer survivors. PM&R. 2011;3:1041–54. https://doi.org/10.1016/j.pmrj.2011.08.535.

Article  Google Scholar 

Ryan JL. Ionizing radiation: the good, the bad, and the ugly. J Invest Dermatol. 2012;132:985–93. https://doi.org/10.1038/jid.2011.411.

Article  PubMed  PubMed Central