Online Information on Lymphedema: Systematic Review of the Quality of Online Patient Resources

Rice RE (2006) Influences, usage, and outcomes of internet health information searching: multivariate results from the pew surveys. Int J Med Inform 75(1):8–28

PubMed  Google Scholar 

Health Information Online. Available at https://www.pewresearch.org/internet/2005/05/17/health-information-online. Visited on 2024–08–14

AlGhamdi KM, Moussa NA (2012) Internet use by the public to search for health-related information. Int J Med Inform 81(6):363–373

PubMed  Google Scholar 

Coiera E (1996) The internet’s challenge to health care provision. BMJ. https://doi.org/10.1136/bmj.312.7022.3

PubMed Central  PubMed  Google Scholar 

Karamitros GA, Kitsos NA, Sapountzis S (2017) Systematic review of quality of patient information on phalloplasty in the internet. Aesthet Plast Surg 41:1426–1434

Google Scholar 

Silver MP (2015) Patient perspectives on online health information and communication with doctors: a qualitative study of patients 50 years old and over. J Med Internet Res 17(1):e3588

Google Scholar 

Szuba A, Rockson SG (1997) Lymphedema: anatomy, physiology and pathogenesis. Vasc Med 2(4):321–326

CAS  PubMed  Google Scholar 

Rockson SG (2001) Lymphedema. Am J Med 110(4):288–295

CAS  PubMed  Google Scholar 

Williams AF, Franks PJ, Moffatt CJ (2005) Lymphoedema: estimating the size of the problem. Palliat Med 19(4):300–313

PubMed  Google Scholar 

Greene AK, Goss JA (2018) Diagnosis and staging of lymphedema. Semin Plast Surg 32:012–016. Thieme Medical Publishers

Szuba A, Rockson S (1998) Lymphedema: a review of diagnostic techniques and therapeutic options. Vasc Med 3:145–156

CAS  PubMed  Google Scholar 

Qu´er´e I, Palmier S, Nøerregaard S, Pastor J et al (2019) Limprint: estimation of the prevalence of lymphoedema/chronic oedema in acute hospital in in-patients. Lymph Res Biol 17(2):135–140

Jaszkul KM, Farrokhi K, Castanov V, Minkhorst K et al (2023) Global impact of lymphedema on quality of life and society. Eur J Plast Surg 46(6):901–913

Google Scholar 

Choi JK, Kim HD, Sim YJ, Kim GC et al (2015) A survey of the status of awareness of lymphedema in breast cancer patients in Busan-gyeongnam, Korea. Ann Rehabil Med 39(4):609–615

PubMed Central  PubMed  Google Scholar 

Pervane VS, Ayhan FF, Soran A (2020) The role of patient awareness and knowledge in developing secondary lymphedema after breast and gynecologic cancer surgery. Lymphat Res Biol 18(6):526–533

Google Scholar 

DiSipio T, Rye S, Newman B, Hayes S (2013) Incidence of unilateral arm lymphoedema after breast cancer: a systematic review and meta-analysis. Lancet Oncol 14(6):500–515

PubMed  Google Scholar 

Zeltzer AA, Anzarut A, Hamdi M (2018) A review of lymphedema for the hand and upper-extremity surgeon. J Hand Surg 43(11):1016–1025

Google Scholar 

Tandra P, Kallam A, Krishnamurthy J (2019) Identification and management of lymphedema in patients with breast cancer. J Oncol Pract 15(5):255–262

PubMed  Google Scholar 

Finkelstein ER, Clark M, Ha M, Singh D et al (2024) Lymphedema surgical education and faculty demographics in United States plastic surgery residency programs. J Reconstr Microsurg 40(05):348–356

PubMed  Google Scholar 

StatCounter Global Stats (2024) Search engine market share worldwide. Retrieved August 14, 2024, from https://gs.statcounter.com/search-engine-market-share

Karamitros G, Kitsos N (2018) Clefts of the lip and palate: is the internet a trustworthy source of information for patients? Int J Oral Maxillofac Surg 47(9):1114–1120

CAS  PubMed  Google Scholar 

Karamitros G, Antonios-Vlachos G, Kok C, Goulas S et al (2024) Evaluating the internet as a source of information for patients with hidradenitis suppurativa: a review of websites’ content, insights into engagement, and access. Dermatol Surg 10–1097. https://doi.org/10.1097/DSS.0000000000004323

Karamitros G, Kakogeorgou V, Chandler NM, Goulas S (2024) Evaluating the web as a source of information for patients with chest wall deformities: insights into engagement and disparities. Pediatr Surg Int 40(1):150

PubMed  Google Scholar 

Moult B, Franck LS, Brady H (2004) Ensuring quality information for patients: development and preliminary validation of a new instrument to improve the quality of written health care information. Health Expect 7(2):165–175

PubMed Central  PubMed  Google Scholar 

Humphrey-Murto S, Varpio L, Wood TJ, Gonsalves C et al (2017) The use of the Delphi and other consensus group methods in medical education research: a review. Acad Med 92(10):1491–1498

PubMed  Google Scholar 

Charvet-Berard A, Chopard P, Perneger T (2008) Measuring quality of patient information documents with an expanded EQIP scale. Patient Educ Couns 70(3):407–411

CAS  PubMed  Google Scholar 

Karamitros G, Grant MP, Lamaris GA (2025) Associations in medical research can be misleading: a clinician’s guide to causal inference. J Surg Res 310:145–154

PubMed  Google Scholar 

Fan KS, Ghani SA, Machairas N, Lenti L et al (2020) Covid-19 prevention and treatment information on the internet: a systematic analysis and quality assessment. BMJ Open 10(9):e040487

PubMed Central  PubMed  Google Scholar 

Ghani S, Fan KS, Fan KH, Lenti L et al (2021) Using the ensuring quality information for patients tool to assess patient information on appendicitis websites: systematic search and evaluation. J Med Internet Res 23(3):e22618

PubMed Central  PubMed  Google Scholar 

Zuk G, Reinisch KB, Raptis DA, Fertsch S et al (2017) Dupuytren disease: is there enough comprehensive patient information on the internet? Interact J Med Res 6(1):e7822

Google Scholar 

Haymes AT (2016) The quality of rhinoplasty health information on the internet. Ann Plast Surg 76(2):143–149

CAS  PubMed  Google Scholar 

McCool ME, Wahl J, Schlecht I, Apfelbacher C (2015) Evaluating written patient information for eczema in German: comparing the reliability of two instruments, DISCERN and EQIP. PLoS One 10(10):e0139895

PubMed Central  PubMed  Google Scholar 

Hong SW, Kang J-H, Park JH, Park HJ et al (2023) Quality and readability of online information on hand osteoarthritis. Health Inform J 29(1):14604582231169296

Google Scholar 

Kim MJ, Kim JR, Jo JH, Kim JS et al (2023) Temporomandibular disorders-related videos on youtube are unreliable sources of medical information: a cross-sectional analysis of quality and content. Digit Health 9:20552076231154376

PubMed Central  PubMed  Google Scholar 

Frattaroli JM, Torto FL, Turriziani G, Bruno E et al (2022) Quality of online information about migraine headache surgery. J Plast Reconstr Aesthet Surg 75(9):3603–3607

PubMed  Google Scholar 

Ademiluyi G, Rees CE, Sheard CE (2003) Evaluating the reliability and validity of three tools to assess the quality of health information on the internet. Patient Educ Couns 50(2):151–155

PubMed  Google Scholar 

Kareh AM, Xu KY (2020) Surgical management of lymphedema. Mo Med 117(2):143

PubMed Central  PubMed  Google Scholar 

Chang EI, Skoracki RJ, Chang DW (2018) Lymphovenous anastomosis bypass surgery. Semin Plast Surg 32:022–027. Thieme Medical Publishers

Diaz JA, Griffith RA, Ng JJ, Reinert SE et al (2002) Patients’ use of the internet for medical information. J Gen Intern Med 17(3):180–185

PubMed Central  PubMed  Google Scholar 

Clarke MA, Moore JL, Steege LM, Koopman RJ et al (2016) Health information needs, sources, and barriers of primary care patients to achieve patient-centered care: a literature review. Health Inform J 22(4):992–1016

Google Scholar 

Karamitros G (2023) Letter regarding: assessing the readability of online education resources related to neophallus reconstruction. J Surg Res. https://doi.org/10.1016/j.jss.2023.08.042

Wolf MS, Gazmararian JA, Baker DW (2005) Health literacy and functional health status among older adults. Arch Intern Med 165(17):1946–1952

PubMed  Google Scholar 

Melloul E, Raptis DA, Oberkofler CE, Dutkowski P et al (2012) Donor information for living donor liver transplantation: where can comprehensive information be found? Liver Transp 18(8):892–900

Google Scholar 

Paidisetty P, Sathyanarayanan S, Wang LK-P, Slaughter K et al (2023) Assessing the readability of online patient education resources related to neophallus reconstruction. J Surg Res 291:296–302

PubMed  Google Scholar 

Park KE, Allam O, Chandler L, Mozzafari MA et al (2020) Surgical management of lymphedema: a review of current literature. Gland Surg 9(2):503

PubMed Central  PubMed  Google Scholar 

Gasteratos K, Morsi-Yeroyannis A, Vlachopoulos NC, Spyropoulou G-A et al (2021) Microsurgical techniques in the treatment of breast cancer-related lymphedema: a systematic review of efficacy and patient outcomes. Breast Cancer 28:1002–1015

PubMed  Google Scholar 

Almadani Y, Davison P, Efanov JI, Kokosis G et al (2024) Demystifying vascularized lymph node transfers and lymphatico-venous anastomoses. Ann Transl Med. https://doi.org/10.21037/atm-23-132

PubMed  Google Scholar 

Zapata-Ospina A, Lopera-Mun˜eto´n C, Betancur-Bedoya SP, A´ngel-Bustos IC et al (2024) Ef- fectiveness of lymphovenular anastomosis and complex decongestive therapy for the treatment of lymphedema in patients with breast cancer: a systematic review. Lymph Res Biol 22(5):232–240

Nicoli F, Constantinides J, Ciudad P, Sapountzis S et al (2015) Free lymph node flap transfer and laser-assisted liposuction: a combined technique for the treatment of moderate upper limb lymphedema. Lasers Med Sci 30:1377–1385

PubMed  Google Scholar 

Bernas M, Thiadens SR, Smoot B, Armer JM et al (2018) Lymphedema following cancer therapy: overview and options. Clin Exp Metas 35:547–551

CAS  Google Scholar 

Gustafson DH, Hawkins RP, Boberg EW, McTavish F et al (2002) Chess: 10 years of re- search and development in consumer health informatics for broad populations, including the underserved. Int J Med Inform 65(3):169–177

Comments (0)

No login
gif