World Health Organization, International Spinal Cord Society. International perspectives on spinal cord injury: World Health Organization; 2013.

Brinkhof MW, Al-Khodairy A, Eriks-Hoogland I, Fekete C, Hinrichs T, Hund-Georgiadis M, et al. Health conditions in people with spinal cord injury: Contemporary evidence from a population-based community survey in Switzerland. J Rehabil Med. 2016;48:197–209.

Article  PubMed  Google Scholar 

Strøm V, Månum G, Arora M, Joseph C, Kyriakides A, OSTERTHUN R, et al. Physical health conditions in persons with spinal cord injury across 21 countries worldwide. Journal of rehabilitation medicine. 2022;54:jrm00302.

Article  PubMed  Google Scholar 

Cao Y, DiPiro N, Krause JS. Health factors and spinal cord injury: a prospective study of risk of cause-specific mortality. Spinal Cord. 2019;57:594–602.

Article  PubMed  Google Scholar 

Valderas JM, Starfield B, Sibbald B, Salisbury C, Roland M. Defining comorbidity: implications for understanding health and health services. The Annals of Family Medicine. 2009;7:357–63.

Article  PubMed  Google Scholar 

Charlson ME, Pompei P, Ales KL, MacKenzie CR. A new method of classifying prognostic comorbidity in longitudinal studies: development and validation. Journal of Clinical Epidemiology. 1987;40:373–83.

CAS  Google Scholar 

Seekins T, Smith N, McCleary T, Clay J, Walsh J. Secondary disability prevention: Involving consumers in the development of a public health surveillance instrument. Journal of Disability Policy Studies. 1990;1:21–36.

Article  Google Scholar 

Sangha O, Stucki G, Liang MH, Fossel AH, Katz JN. The self‐administered comorbidity questionnaire: a new method to assess comorbidity for clinical and health services research. Arthritis Care & Research: Official Journal of the American College of Rheumatology. 2003;49:156–63.

Article  Google Scholar 

Aubert CE, Fankhauser N, Marques-Vidal P, Stirnemann J, Aujesky D, Limacher A, et al. Multimorbidity and healthcare resource utilization in Switzerland: a multicentre cohort study. BMC health services research. 2019;19:1–9.

Article  Google Scholar 

Buddeke J, Bots ML, van Dis I, Visseren FL, Hollander M, Schellevis FG, et al. Comorbidity in patients with cardiovascular disease in primary care: a cohort study with routine healthcare data. Br J Gen Pract. 2019;69:e398–e406.

Article  PubMed  PubMed Central  Google Scholar 

Seekins T, Ravesloot C. Secondary conditions experienced by adults with injury-related disabilities in Montana. Topics in Spinal Cord Injury Rehabilitation. 2000;6:43–53.

Article  Google Scholar 

Kalpakjian CZ, Scelza WM, Forchheimer MB, Toussaint LL. Preliminary reliability and validity of a spinal cord injury secondary conditions scale. The journal of spinal cord medicine. 2007;30:131–9.

Article  PubMed  PubMed Central  Google Scholar 

Arora M, Harvey L, Lavrencic L, Bowden J, Nier L, Glinsky J, et al. A telephone-based version of the spinal cord injury–secondary conditions scale: a reliability and validity study. Spinal Cord. 2016;54:402–5.

Article  CAS  PubMed  Google Scholar 

Stucki G, Bickenbach J. The international spinal cord injury survey and the learning health system for spinal cord injury. American journal of physical medicine & rehabilitation. 2017;96:S2–S4.

Article  Google Scholar 

Stucki G, Bickenbach J. The implementation challenge and the learning health system for SCI initiative. Am J Phys Med Rehabil. 2017;96:S55–S60.

Article  PubMed  Google Scholar 

Cieza A. The international spinal cord injury survey and the learning health system for spinal cord injury. Am J Phys Med Rehabil. 2017;96:S1.

Article  PubMed  Google Scholar 

Gross-Hemmi MH, Post MW, Ehrmann C, Fekete C, Hasnan N, Middleton JW, et al. Study protocol of the international spinal cord injury (InSCI) community survey. Am J Phys Med Rehabil. 2017;96:S23–S34.

Article  PubMed  Google Scholar 

Fekete C, Brach M, Ehrmann C, Post MW, Stucki G. Cohort profile of the international spinal cord injury (InSCI) community survey implemented in 22 countries. Archives of Physical Medicine and Rehabilitation. 2020;101:2103–11.

Article  PubMed  Google Scholar 

Fekete C, Post MW, Bickenbach J, Middleton J, Prodinger B, Selb M, et al. A structured approach to capture the lived experience of spinal cord injury: data model and questionnaire of the international spinal cord injury community survey. Am J Phys Med Rehabil. 2017;96:S5–S16.

Article  PubMed  Google Scholar 

Fekete C, Gurtner B, Simon K, Gemperli A, Gmünder HP, Hund-Georgiadis M, et al. Inception cohort of the swiss spinal cord injury cohort study (SwiSCI): design, participant characteristics, response rates and non-response. Journal of rehabilitation medicine. 2021;53:jrm00159.

PubMed  Google Scholar 

Post MW, Brinkhof MW, von, Elm E, Boldt C, Brach M, et al. Design of the Swiss spinal cord injury cohort study. American Journal of Physical Medicine & Rehabilitation. 2011;90:S5–S16.

Article  Google Scholar 

Krause JS, Cao Y, DeVivo MJ, DiPiro ND. Risk and protective factors for cause-specific mortality after spinal cord injury. Archives of physical medicine and rehabilitation. 2016;97:1669–78.

Article  PubMed  Google Scholar 

Sabariego C, Ehrmann C, Bickenbach J, Pacheco Barzallo D, Schedin Leiulfsrud A, Strøm V, et al. Ageing, functioning patterns and their environmental determinants in the spinal cord injury (sci) population: a comparative analysis across eleven european countries implementing the international spinal cord injury community survey. Plos one. 2023;18:e0284420.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Lorem G, Cook S, Leon DA, Emaus N, Schirmer H. Self-reported health as a predictor of mortality: A cohort study of its relation to other health measurements and observation time. Scientific Reports. 2020;10:4886.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Chamberlain JD, Meier S, Mader L, von Groote PM, Brinkhof MW. Mortality and longevity after a spinal cord injury: systematic review and meta-analysis. Neuroepidemiology. 2015;44:182–98.

Article  PubMed  Google Scholar 

Fekete C, Debnar C, Scheel-Sailer A, Gemperli A. Does the socioeconomic status predict health service utilization in persons with enhanced health care needs? Results from a population-based survey in persons with spinal cord lesions from Switzerland. Int J Equity Health. 2022;21:94.

Article  PubMed  PubMed Central  Google Scholar 

Pacheco Barzallo D, Gross-Hemmi M, Bickenbach J, Juocevičius A, Popa D, Wahyuni LK, et al. Quality of life and the health system: a 22-country comparison of the situation of people with spinal cord injury. Archives of physical medicine and rehabilitation. 2020;101:2167–76.

Article  PubMed  Google Scholar 

Barzallo DP, Gross-Hemmi M, Bickenbach J, Juocevičius A, Popa D, Wahyuni LK, et al. Quality of life and the health system: a 22-country comparison of the situation of people with spinal cord injury. Archives of Physical Medicine and Rehabilitation. 2020;101:2167–76.

Article  Google Scholar