Vos, T., Abajobir, A. A., Abate, K. H., Abbafati, C., Abbas, K. M., Abd-Allah, F., Abdulkader, R. S., Abdulle, A. M., Abebo, T. A., Abera, S. F., & Aboyans, V. (2017). Global, regional, and national incidence, prevalence, and years lived with disability for 328 diseases and injuries for 195 countries, 1990–2016: A systematic analysis for the global burden of disease study 2016. The Lancet, 390(10100), 1211–1259.
Satija, A., Lorenz, K., DeNatale, M., Spruyt, O., Deo, S. V. S., & Bhatnagar, S. (2019). Role of early palliative care in advanced head-and-neck cancers patients. Indian Journal of Palliative Care, 25(1), 153.
PubMed PubMed Central Google Scholar
Anderson, G., Ebadi, M., Vo, K., Novak, J., Govindarajan, A., & Amini, A. (2021). An updated review on head and neck cancer treatment with radiation therapy. Cancers, 13(19), 4912.
Article CAS PubMed PubMed Central Google Scholar
Cocks, H., Ah-See, K., Capel, M., & Taylor, P. (2016). Palliative and supportive care in head and neck cancer: United Kingdom national multidisciplinary guidelines. The Journal of Laryngology & Otology, 130(S2), S198–S207.
Shavi, G. R., Thakur, B., Bhambal, A., Jain, S., Singh, V., & Shukla, A. (2015). Oral health related quality of life in patients of head and neck cancer attending cancer hospital of Bhopal City, India. Journal of International Oral Health: JIOH, 7(8), 21.
PubMed PubMed Central Google Scholar
Civantos, A. M., Prasad, A., Carey, R. M., Bur, A. M., Mady, L. J., Brody, R. M., Rajasekaran, K., Cannady, S. B., Hartner, L., Ibrahim, S. A., Newman, J. G., & Brant, J. A. (2021). Palliative care in metastatic head and neck cancer. Head and Neck, 43(9), 2764–2777.
Saravia, A., Kong, K. A., Roy, R., Barry, R., Guidry, C., McDaniel, L. S., Raven, M. C., Pou, A. M., & Mays, A. C. (2022). Referral patterns of outpatient palliative care among the head and neck cancer population. Int Arch Otorhinolaryngol, 26(4), e538–e547.
Article PubMed PubMed Central Google Scholar
Indian Association of Palliative Care (2019) Textbook for Certificate Course in Essentials of Palliative Care.5th ed. Kozhikode
Krug, K., Miksch, A., Peters-Klimm, F., Engeser, P., & Szecsenyi, J. (2016). Correlation between patient quality of life in palliative care and burden of their family caregivers: A prospective observational cohort study. BMC palliative care, 15(1), 1–8.
Greer, J. A., Applebaum, A. J., Jacobsen, J. C., Temel, J. S., & Jackson, V. A. (2020). Understanding and addressing the role of coping in palliative care for patients with advanced cancer. Journal of clinical oncology, 38(9), 915.
Article PubMed PubMed Central Google Scholar
Oermann, M., Webb, S., & Ashare, J. J. A. (2003). Outcomes of videotape instruction in clinic waiting area. Orthopaedic Nursing, 22(2), 102–105.
Hendrix, C. C., Bailey, D. E., Jr., Steinhauser, K. E., Olsen, M. K., Stechuchak, K. M., Lowman, S. G., Schwartz, A. J., Riedel, R. F., Keefe, F. J., Porter, L. S., & Tulsky, J. A. (2016). Effects of enhanced caregiver training program on cancer caregiver’s self-efficacy, preparedness, and psychological well-being. Supportive Care in Cancer, 24(1), 327–336.
Hortense, F. T. P., Bergerot, C. D., & Domenico, E. B. L. (2020). Quality of life, anxiety and depression in head and neck cancer patients: A randomized clinical trial. Revista da Escola de Enfermagem da USP. https://doi.org/10.1590/s1980-220x2018040103546
Golden-Plotnik, S., Ali, S., Drendel, A. L., Wong, T., Ferlisi, F., Todorovich, S., Canton, K., Miller, M., Younan, J., Elsie, S., & Poonai, N. (2018). A Web-based module and online video for pain management education for caregivers of children with fractures: A randomized controlled trial. Canadian Journal of Emergency Medicine, 20(6), 882–891.
Tuong, W., Larsen, E. R., & Armstrong, A. W. (2014). Videos to influence: A systematic review of effectiveness of video-based education in modifying health behaviors. Journal of behavioral medicine, 37(2), 218–233.
Pepin, E., & Hébert, J. (2020). Needs of caregivers of patients receiving in-home palliative and end-of-life care. Canadian OnCOlOgy nursing JOurnal, 30(2), 147.
Article PubMed PubMed Central Google Scholar
Kristanti, M. S., Setiyarini, S., & Effendy, C. (2017). Enhancing the quality of life for palliative care cancer patients in Indonesia through family caregivers: A pilot study of basic skills training. BMC palliative care, 16(1), 1–7.
Finucane, A. M., O’Donnell, H., Lugton, J., Gibson-Watt, T., Swenson, C., & Pagliari, C. (2021). Digital health interventions in palliative care: A systematic meta-review. NPJ Digit Med, 4(1), 64.
Article PubMed PubMed Central Google Scholar
Mayland, C. R., Ho, Q. M., Doughty, H. C., Rogers, S. N., Peddinti, P., Chada, P., Mason, S., Cooper, M., & Dey, P. (2021). The palliative care needs and experiences of people with advanced head and neck cancer: A scoping review. Palliative medicine, 35(1), 27–44.
Immanuel, T., Kumar, S. (2020). Home Based Palliative Care: A Manual for Nurses. Kozhikode: Institute of Palliative Medicine (IPM)
Baik, D., Russell, D., Jordan, L., Dooley, F., Bowles, K. H., & Masterson Creber, R. M. (2018). Using the palliative performance scale to estimate survival for patients at the end of life: A systematic review of the literature. Journal of palliative medicine, 21(11), 1651–1661.
Article PubMed PubMed Central Google Scholar
Nelke, K. H., Pawlak, W., Gerber, H., & Leszczyszyn, J. (2014). Head and neck cancer patients’ quality of life. Advances in Clinical and Experimental Medicine: Official Organ Wroclaw Medical University, 23(6), 1019–1027.
Snyder, C. F., Blackford, A. L., Okuyama, T., Akechi, T., Yamashita, H., Toyama, T., Carducci, M. A., & Wu, A. W. (2013). Using the EORTC-QLQ-C30 in clinical practice for patient management: Identifying scores requiring a clinician’s attention. Quality of Life Research, 22(10), 2685–2691.
Dandekar, M., Tuljapurkar, V., Dhar, H., Panwar, A., & DCruz, A. K. (2017). Head and neck cancers in India. Journal of Surgical Oncology, 115(5), 555–563.
Gandhi, A. K., Roy, S., Thakar, A., Sharma, A., & Mohanti, B. K. (2014). Symptom burden and quality of life in advanced head and neck cancer patients: AIIMS study of 100 patients. Indian Journal of palliative care, 20(3), 189.
Article PubMed PubMed Central Google Scholar
Lin, Y. L., Lin, I. C., & Liou, J. C. (2011). Symptom patterns of patients with head and neck cancer in a palliative care unit. Journal of palliative medicine, 14(5), 556–559.
do Nascimento Santos Lima, E., Ferreira, I. B., de Lajolo, P. P., Paiva, C. E., Paiva Maia, Y. C., & das Graças, P. G. (2020). Health-related quality of life became worse in short-term during treatment in head and neck cancer patients: a prospective study. Health and Quality of Life Outcomes, 18(1), 1–12.
Westgaard, K. L., Hynne, H., Amdal, C. D., Young, A., Singh, P. B., Chen, X., et al. (2021). Oral and ocular late effects in head and neck cancer patients treated with radiotherapy. Scientific reports, 11(1), 1–11.
Vogt, J., Beyer, F., Sistermanns, J., Kuon, J., Kahl, C., Alt-Epping, B., Stevens, S., Ahlborn, M., George, C., Heider, A., Tienken, M., Loquai, C., Stahlhut, K., Ruellan, A., Kubin, T., Dietz, A., Oechsle, K., Mehnert-Theuerkauf, A., van Oorschot, B., … ArbeitsgemeinschaftPalliativmedizin (APM) of the German Cancer Society (DKG). (2021). Symptom burden and palliative care needs of patients with incurable cancer at diagnosis and during the disease course. The oncologist, 26(6), e1058–e1065.
Article CAS PubMed PubMed Central Google Scholar
Report of National Cancer Registry Programme 2020 [Internet]. [cited 2022 Feb 22]. Available from: https://www.ncdirindia.org/All_Reports/Report_2020/default.aspx
Nightingale, C., Sterba, K. R., Levine, B., Tooze, J. A., Greven, K., Frizzell, B., Hughes, R. T., Snavely, A., Lesser, G. J., Norona, S., Pleasant, K., & Weaver, K. E. (2022). Feasibility and acceptability of a multi-modality self-management intervention for head and neck cancer caregivers: A pilot randomized trial. Integrative Cancer Therapies, 21, 15347354221098984.
Article PubMed PubMed Central Google Scholar
Devine, K. A., Viola, A. S., Coups, E. J., & Wu, Y. P. (2018). Digital health interventions for adolescent and young adult cancer survivors. JCO Clin Cancer Inform, 2, 1–15.
Aoun, S., Slatyer, S., Deas, K., & Nekolaichuk, C. (2017). Family caregiver participation in palliative care research: challenging the myth. Journal of pain and symptom management, 53(5), 851–861. https://doi.org/10.1016/j.jpainsymman.2016.12.327
Luu, K. L., Witkamp, F. E., Nieboer, D., Bakker, E. M., Kranenburg, L. W., van der Rijt, C. C. D., Lorig, K., van der Heide, A., & Rietjens, J. A. C. (2022). Effectiveness of the “Living with Cancer” peer self-management support program for persons with advanced cancer and their relatives: study protocol of a non-randomized stepped wedge study. BMC palliative care, 21(1), 1–9. https://doi.org/10.1186/s12904-022-00994-5
Matthys, O., De Vleminck, A., Dierickx, S., Deliens, L., Van Goethem, V., Lapeire, L., Groenvold, M., Lund, L., Arnfeldt, C. M., Sengeloev, L., Pappot, H., Johnsen, A. T., Guerin, S., Larkin, P. J., Jordan, C., Connolly, M., D’Alton, P., Costantini, M., Di Leo, S., … Cohen, J. (2021). Effectiveness of a nurse-delivered (FOCUS+) and a web-based (iFOCUS) psychoeducational intervention for people with advanced cancer and their family caregivers (DIAdIC): Study protocol for an international randomized controlled trial. BMC palliative care, 20(1), 1–18.
Gomes, B., Calanzani, N., Curiale, V., McCrone, P., & Higginson, I.J. (2013). Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers. Cochrane Database of Systematic Reviews, 2013(6), CD007760. https://doi.org/10.1002/14651858.CD007760.pub2
Groenvold, M., Petersen, M. A., Aaronson, N. K., Arraras, J. I., Blazeby, J. M., Bottomley, A., Fayers, P. M., de Graeff, A., Hammerlid, E., Kaasa, S., et al. (2006). The development of the EORTC QLQ-C15-PAL: A shortened questionnaire for cancer patients in palliative care. European Journal of Cancer, 42(1), 55–64.
Singer, S., Amdal, C. D., Hammerlid, E., Tomaszewska, I. M., Castro Silva, J., Mehanna, H., Santos, M., Inhestern, J., Brannan, C., Yarom, N., Fullerton, A., Pinto, M., Arraras, J. I., Kiyota, N., Bonomo, P., Sherman, A. C., Baumann, I., Galalae, R., Fernandez Gonzalez, L., … EORTC Quality of Life and the EORTC Head and Neck Cancer Groups. (2019). International validation of the revised European organisation for research and treatment of cancer head and neck cancer module, the EORTC QLQ-HN43: Phase IV. Head & neck, 41(6), 1725–1737.
Ayushman Bharat. (2018). Comprehensive primary health care through health and wellness centers: operational guidelines. New Delhi: Ministry of Health and Family Welfare, Government of India.
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