Oppe, M., Devlin, N. J., van Hout, B., Krabbe, P. F. M., & de Charro, F. (2014). A program of methodological research to arrive at the new international EQ-5D-5L valuation protocol. Value in Health, 17(4), 445–453. https://doi.org/10.1016/j.jval.2014.04.002

Article  PubMed  Google Scholar 

Brooks, R. (1996). EuroQol: The current state of play. Health Policy, 37(1), 53–72. https://doi.org/10.1016/0168-8510(96)00822-6

Article  CAS  PubMed  Google Scholar 

Herdman, M., Gudex, C., Lloyd, A., Janssen, M. F., Kind, P., Parkin, D., Bonsel, G., & Badia, X. (2011). Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Quality of Life Research, 20(10), 1727–1736. https://doi.org/10.1007/s11136-011-9903-x

Article  CAS  PubMed  PubMed Central  Google Scholar 

Kennedy-Martin, M., Slaap, B., Herdman, M., van Reenen, M., Kennedy-Martin, T., Greiner, W., Busschbach, J., & Boye, K. S. (2020). Which multi-attribute utility instruments are recommended for use in cost-utility analysis? A review of national health technology assessment (HTA) guidelines. The European Journal of Health Economics, 21(8), 1245–1257. https://doi.org/10.1007/s10198-020-01195-8

Article  PubMed  PubMed Central  Google Scholar 

National Institute for Health and Care Excellence. (2013). Methods for health technology assessment. National Institute for Health and Care Excellence.

Google Scholar 

Pharmaceutical Benefits Advisory Committee. (2015). Guidelines for preparing submissions to the Pharmaceutical Benefits Advisory Committee. Australian Department of Health.

Devlin, N., Roudijk, B., & Ludwig, K. (2021). Value sets for EQ-5D-5L: A compendium, comparative review & user guide. Springer.

Google Scholar 

Cella, D., Riley, W., Stone, A., Rothrock, N., Reeve, B. B., Yount, S., et al. (2010). The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008. Journal of Clinical Epidemiology, 63(11), 1179–1194. https://doi.org/10.1016/j.jclinepi.2010.04.011

Article  PubMed  PubMed Central  Google Scholar 

Reeve, B. B., Hays, R., Bjorner, J. B., Cook, K., Crane, P., Teresi, J., et al. (2007). Psychometric evaluation and calibration of health-related quality of life item banks: Plans for the Patient-Reported Outcomes Measurement Information System (PROMIS). Medical Care, 45(51), S22-31. https://doi.org/10.1097/01.mlr.0000250483.85507.04

Article  PubMed  Google Scholar 

Cella, D., Choi, S. W., Condon, D. M., Schalet, B., Hays, R. D., Rothrock, N. E., Yount, S., Cook, K. F., Gershon, R. C., Amtmann, D., DeWalt, D. A., Pilkonis, P. A., Stone, A. A., Weinfurt, K., & Reeve, B. B. (2019). PROMIS((R)) adult health profiles: efficient short-form measures of seven health domains. Value in Health, 22(5), 537–544. https://doi.org/10.1016/j.jval.2019.02.004

Article  PubMed  PubMed Central  Google Scholar 

Dewitt, B., Feeny, D., Fischhoff, B., Cella, D., Hays, R. D., Hess, R., Pilkonis, P. A., Revicki, D. A., Roberts, M. S., Tsevat, J., Yu, L., & Hanmer, J. (2018). Estimation of a preference-based summary score for the patient-reported outcomes measurement information system: The PROMIS®-Preference (PROPr) Scoring System. Medical Decision Making, 38(6), 683–698. https://doi.org/10.1177/0272989X18776637

Article  PubMed  PubMed Central  Google Scholar 

Dewitt, B., Jalal, H., & Hanmer, J. (2020). Computing PROPr utility scores for PROMIS profile instruments. Value in Health, 23(3), 370–378. https://doi.org/10.1016/j.jval.2019.09.2752

Article  PubMed  Google Scholar 

Evans, J., Smith, A., Gibbons, C., Alonso, J., & Valderas, J. M. (2018). The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): A view from the UK. Patient Related Outcome Measures, 24(9), 345–352. https://doi.org/10.2147/PROM.S141378

Article  Google Scholar 

Pan, T., Mulhern, B., Viney, R., Norman, R., Tran-Duy, A., Hanmer, J., & Devlin, N. (2022). Evidence on the relationship between PROMIS-29 and EQ-5D: A Literature Review. Quality of Life Research, 31(1), 79–89. https://doi.org/10.1007/s11136-021-02911-4

Article  PubMed  Google Scholar 

Hanmer, J., Dewitt, B., Yu, L., Tsevat, J., Roberts, M., Revicki, D., Pilkonis, P. A., Hess, R., Hays, R. D., Fischhoff, B., Feeny, D., Condon, D., & Cella, D. (2018). Cross-sectional validation of the PROMIS-preference scoring system. PLoS ONE, 13(7), e0201093. https://doi.org/10.1371/journal.pone.0201093

Article  CAS  PubMed  PubMed Central  Google Scholar 

Khanna, D., Serrano, J., Berrocal, V. J., Silver, R. M., Cuencas, P., Newbill, S. L., Battyany, J., Maxwell, C., Alore, M., Dyas, L., Riggs, R., Connolly, K., Kellner, S., Fisher, J. J., Bush, E., Sachdeva, A., Evnin, L., Raisch, D. W., & Poole, J. L. (2019). Randomized controlled trial to evaluate an internet-based self-management program in systemic sclerosis. Arthritis Care and Research, 71(3), 435–447. https://doi.org/10.1002/acr.23595

Article  PubMed  Google Scholar 

Murphy, S. L., Whibley, D., Kratz, A. L., Poole, J. L., & Khanna, D. (2020). Fatigue predicts future reduced social participation, not reduced physical function or quality of life in people with systemic sclerosis. Journal of Scleroderma and Related Disorders. https://doi.org/10.1177/2397198320965383

Article  PubMed  PubMed Central  Google Scholar 

Dunn, S. L., DeVon, H. A., Buursma, M. P., Boven, E., & Tintle, N. L. (2020). Reliability and validity of the state-trait hopelessness scale in patients with heart disease and moderate to severe hopelessness. Journal of Cardiovascular Nursing, 35(2), 126–130. https://doi.org/10.1097/jcn.0000000000000647

Article  PubMed  Google Scholar 

Klapproth, C. P., van Bebber, J., Sidey-Gibbons, C. J., Valderas, J. M., Leplege, A., Rose, M., & Fischer, F. (2020). Predicting EQ-5D-5L crosswalk from the PROMIS-29 profile for the United Kingdom, France, and Germany. Health and Quality of Life Outcomes, 18(1), 389. https://doi.org/10.1186/s12955-020-01629-0

Article  PubMed  PubMed Central  Google Scholar 

Kempton, C. L., Michaels Stout, M., Barry, V., Figueroa, J., Buckner, T. W., Gillespie, S., Ellen Lynch, M., Mattis, S., Whitten, S., & McCracken, C. (2021). Validation of a new instrument to measure disease-related distress among patients with haemophilia. Haemophilia, 27(1), 60–68. https://doi.org/10.1111/hae.14187

Article  PubMed  Google Scholar 

Pan, T., Mulhern, B., Viney, R., Norman, R., Tran-Duy, A., Hanmer, J., & Devlin, N. (2022). A comparison of PROPr and EQ-5D-5L value sets. PharmacoEconomics, 40(30), 297–307. https://doi.org/10.1007/s40273-021-01109-3

Article  PubMed  Google Scholar 

Rencz, F., Brodsky, V., & Janssen, M. F. (2023). A direct comparison of the measurement properties of EQ-5D-5L, PROMIS-29+2 and PROMIS global health instruments and EQ-5D-5L and PROPr utilities in a general population sample. Value in Health. https://doi.org/10.1016/j.jval.2023.02.002

Article  PubMed  Google Scholar 

Mulhern B. (2020). Broadening the measurement and valuation of health and quality of life. PhD Thesis, University of Technology Sydney.

Norman, R., Cronin, P., & Viney, R. (2013). A pilot discrete choice experiment to explore preferences for EQ-5D-5L health states. Applied Health Economics and Health Policy, 11(3), 287–298. https://doi.org/10.1007/s40258-013-0035-z

Article  PubMed  Google Scholar 

Pickard, S., Law, E., Jiang, R., Pullenayegum, E., Shaw, J. W., Xie, F., Oppe, M., Boye, K. S., Chapman, R. H., Gong, C. L., Balch, A., & Busschbach, J. J. V. (2019). United States valuation of EQ-5D-5L health states using an international protocol. Value in Health, 22(8), 931–941. https://doi.org/10.1016/j.jval.2019.02.009

Article  PubMed  Google Scholar 

PROMIS. PROMIS ADULT PROFILE INSTRUMENTS: A brief guide to the PROMIS® Profile instruments for adult respondents. https://www.healthmeasures.net/images/PROMIS/manuals/PROMIS_Adult_Profile_Scoring_Manual.pdf. Accessed 22 Sep 2020

Terwee, C. B., Bot, S. D. M., de Boer, M. R., van der Windt, D. A. W. M., Knol, D. L., Dekker, J., Bouter, L. M., & de Vet, H. C. W. (2007). Quality criteria were proposed for measurement properties of health status questionnaires. Journal of Clinical Epidemiology, 60(1), 34–42. https://doi.org/10.1016/j.jclinepi.2006.03.012

Article  PubMed  Google Scholar 

Cohen, J. (1988). Statistical power analysis for the behavioral sciences. Routledge Academic.

Google Scholar 

Feng, Y. S., Kohlmann, T., Janssen, M. F., & Buchholz, I. (2021). Psychometric properties of the EQ-5D-5L: A systematic review of the literature. Quality of Life Research, 30(3), 647–673. https://doi.org/10.1007/s11136-020-02688-y

Article  PubMed  Google Scholar 

Engel, L., Whitehurst, D. G. T., Haagsma, J., Janssen, M. F., & Mulhern, B. (2023). What is measured by the composite, single-item pain/discomfort dimension of the EQ-5D-5L? An exploratory analysis. Quality of Life Research, 32(4), 1175–1186. https://doi.org/10.1007/s11136-022-03312-x

Article  PubMed  Google Scholar 

McDonald, R., Mullett, T. L., & Tsuchiya, A. (2020). Understanding the composite dimensions of the EQ-5D: An experimental approach. Social Science and Medicine, 265, 113323. https://doi.org/10.1016/j.socscimed.2020.113323

Article  PubMed  Google Scholar 

Tsuchiya, A., Bansback, N., Hole, A. R., & Mulhern, B. (2019). Manipulating the 5 dimensions of the EuroQol instrument: The effects on self-reporting actual health and valuing hypothetical health states. Medical Decision Making, 39(4), 380–392. https://doi.org/10.1177/0272989x19851049

Article  Google Scholar 

Revicki, D. A., Kawata, A. K., Harnam, N., Chen, W. H., Hays, R. D., & Cella, D. (2010). Predicting EuroQol (EQ-5D) scores from the patient-reported outcomes measurement information system (PROMIS) global items and domain item banks in a United States sample. Quality of Life Research, 18(6), 783–791. https://doi.org/10.1007/s11136-009-9489-8

Article  Google Scholar 

Hanmer, J. (2021). Cross-sectional validation of the PROMIS-Preference scoring system by its association with social determinants of health. Quality of Life Research, 30(3), 881–889. https://doi.org/10.1007/s11136-020-02691-3

Article  PubMed  Google Scholar 

Hanmer, J., DeWalt, D., & Berkowitz, S. A. (2021). Association between Food Insecurity and Health-Related Quality of Life: A Nationally Representative Survey. Journal of General Internal Medicine, 36(6), 1638–1647. https://doi.org/10.1007/s11606-020-06492-9

Article  PubMed  PubMed Central  Google Scholar 

Richardson, J., Khan, M., Iezzi, A., & Maxwell, A. (2015). Comparing and explaining differences in the magnitude, content, and sensitivity of utilities predicted by the EQ-5D, SF-6D, HUI 3, 15D, QWB, and AQoL-8D multi-attribute utility instruments. Medical Decision Making, 35(3), 276–291. https://doi.org/10.1177/0272989x14543107

Article  PubMed  Google Scholar 

Netten, A., Burge, P., Malley, J., Potoglou, D., Towers, A. M., Brazier, J., Flynn, T., Forder, J., & Wall, B. (2012). Outcomes of social care for adults: Developing a preference-weighted measure. Health Technology Assessment, 16(16), 1–166. https://doi.org/10.1177/0272989X14543107