Health-related quality of life profiles in adolescents and young adults with chronic conditions

Gore, F. M., et al. (2011). Global burden of disease in young people aged 10–24 years: A systematic analysis. The Lancet, 377(9783), 2093–2102.

Article  Google Scholar 

Yeo, M., & Sawyer, S. (2005). Chronic illness and disability. BMJ, 330(7493), 721–723.

Article  PubMed  PubMed Central  Google Scholar 

Sprangers, M. A. G. (2002). Quality-of-life assessment in oncology. Acta Oncologica, 41(3), 229–237.

Article  PubMed  Google Scholar 

Cella, D. F., & Tulsky, D. S. (1990). Measuring quality of life today: methodological aspects. Oncology (Williston Park, N.Y.), 4(5), 29–38. discussion 69.

CAS  PubMed  Google Scholar 

Siegrist, J., & Junge, A. (1989). Conceptual and methodological problems in research on the quality of life in clinical medicine. Social Science and Medicine, 29(3), 463–468.

Article  CAS  PubMed  Google Scholar 

Stewart, A. L., et al. (1989). Functional status and well-being of patients with chronic conditions: Results from the medical outcomes study. JAMA, 262(7), 907–913.

Article  CAS  PubMed  Google Scholar 

Schlenk, E. A., et al. (1997). Health-related quality of life in chronic disorders: A comparison across studies using the MOS SF-36. Quality of life research, 7(1), 57–65.

Article  Google Scholar 

Langeveld, N. E., et al. (2002). Quality of life in young adult survivors of childhood cancer. Supportive Care in Cancer, 10(8), 579–600.

Article  CAS  PubMed  Google Scholar 

Ashing-Giwa, K. T., et al. (2007). Examining predictive models of HRQOL in a population-based, multiethnic sample of women with breast carcinoma. Quality of Life Research, 16(3), 413–428.

Article  PubMed  Google Scholar 

Bellizzi, K. M., et al. (2012). Double jeopardy? Age, race, and HRQOL in older adults with cancer. Journal of Cancer Epidemiology, 2012, 1–9.

Article  Google Scholar 

Clauser, S. B., et al. (2008). Disparities in HRQOL of cancer survivors and non-cancer managed care enrollees. Health Care Financing Review, 29(4), 23.

PubMed  PubMed Central  Google Scholar 

Deimling, G. T., et al. (2005). The health of older-adult, long-term cancer survivors. Cancer Nursing, 28(6), 415–424.

Article  PubMed  Google Scholar 

Varni, J. W., Limbers, C. A., & Burwinkle, T. M. (2007). Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes, 5(1), 43.

Article  PubMed  PubMed Central  Google Scholar 

Uzark, K., et al. (2008). Quality of life in children with heart disease as perceived by children and parents. Pediatrics, 121(5), e1060–e1067.

Article  PubMed  Google Scholar 

Devinsky, O., et al. (1999). Risk factors for poor health-related quality of life in adolescents with epilepsy. Epilepsia, 40(12), 1715–1720.

Article  CAS  PubMed  Google Scholar 

Hallstrand, T. S., et al. (2003). Quality of life in adolescents with mild asthma. Pediatric Pulmonology, 36(6), 536–543.

Article  PubMed  PubMed Central  Google Scholar 

Gaspar, T., et al. (2010). Quality of life: differences related to gender, age, socio-economic status and health status, in Portuguese teens. Revista de Psicologia da Criança e do Adolescente, 2, 87–104.

Google Scholar 

Colver, A., et al. (2015). Self-reported quality of life of adolescents with cerebral palsy: A cross-sectional and longitudinal analysis. The Lancet, 385(9969), 705–716.

Article  Google Scholar 

Parkinson, K. N., et al. (2015). Influence of adiposity on health-related quality of life in the Gateshead Millennium Study cohort: Longitudinal study at 12 years. Archives of Disease in Childhood, 100(8), 779–783.

Article  PubMed  Google Scholar 

Kaczmarek, C., Haller, D. M., & Yaron, M. (2016). Health-related quality of life in adolescents and young adults with polycystic ovary syndrome: A systematic review. Journal of pediatric and adolescent gynecology, 29(6), 551–557.

Article  PubMed  Google Scholar 

Kamp-Becker, I., et al. (2010). Health-related quality of life in adolescents and young adults with high functioning autism-spectrum disorder. Psychosocial Medicine. https://doi.org/10.3205/psm000065

Article  Google Scholar 

Jennes-Coussens, M., Magill-Evans, J., & Koning, C. (2006). The quality of life of young men with Asperger syndrome: A brief report. Autism, 10(4), 403–414.

Article  PubMed  Google Scholar 

Jörngården, A., Wettergen, L., & von Essen, L. (2006). Measuring health-related quality of life in adolescents and young adults: Swedish normative data for the SF-36 and the HADS, and the influence of age, gender, and method of administration. Health and Quality of Life Outcomes, 4(1), 1–10.

Article  Google Scholar 

Smith, A. W., et al. (2013). Health-related quality of life of adolescent and young adult patients with cancer in the United States: The adolescent and young adult health outcomes and patient experience study. Journal of Clinical Oncology, 31(17), 2136–2145.

Article  PubMed  PubMed Central  Google Scholar 

Nelson, T. D., et al. (2014). Health-related quality of life among adolescents in residential care: Description and correlates. American Journal of Orthopsychiatry, 84(3), 226.

Article  PubMed  Google Scholar 

Pemberger, S., et al. (2005). Quality of life in long-term childhood cancer survivors and the relation of late effects and subjective well-being. Supportive Care in Cancer, 13(1), 49–56.

Article  PubMed  Google Scholar 

Wang, J., & Lanza, S. T. (2010). Preface of methods and applications of mixture models, special journal issue of advances and applications of statistical sciences. Advances and Applications in Statistical Sciences, 3, 1–6.

Google Scholar 

Wang, J., & Wang, X. (2012). Structural equation modeling with Mplus: Methods and applications. Wiley.

Book  Google Scholar 

Buckner, T. W., et al. (2014). Patterns of symptoms and functional impairments in children with cancer. Pediatric Blood & Cancer, 61(7), 1282–1288.

Article  Google Scholar 

Hinds, P. S., et al. (2021). Subjective toxicity profiles of children in treatment for cancer: A new guide to supportive care? Journal of Pain and Symptom Management, 61(6), 1188-1195.e2.

Article  PubMed  Google Scholar 

Barsevick, A. M., & Aktas, A. (2013). Cancer symptom cluster research: New perspectives and tools. Current Opinion in Supportive and Palliative Care, 7(1), 36–37.

Article  PubMed  Google Scholar 

Davis, P. J., et al. (2003). Multidimensional subgroups in migraine: Differential treatment outcome to a pain medicine program. Pain Medicine, 4(3), 215–222.

Article  PubMed  Google Scholar 

Miaskowski, C., et al. (2006). Online exclusive-subgroups of patients with cancer with different symptom experiences and quality-of-life outcomes: A cluster analysis. Oncology Nursing Forum, 33, E79–E89.

Article  PubMed  Google Scholar 

Laursen, B., & Hoff, E. (2006). Person-centered and variable-centered approaches to longitudinal data. Merrill-Palmer Quarterly (1982-), 52, 377–389.

Article  Google Scholar 

Stewart, D. W. (1981). The application and misapplication of factor analysis in marketing research. Journal of Marketing Research, 18(1), 51–62.

Article  Google Scholar 

Olaya, B., et al. (2017). Latent class analysis of multimorbidity patterns and associated outcomes in Spanish older adults: A prospective cohort study. BMC Geriatrics, 17, 1–10.

Article  Google Scholar 

Larsen, F. B., et al. (2017). A latent class analysis of multimorbidity and the relationship to socio-demographic factors and health-related quality of life. A national population-based study of Danish adults. PLoS ONE, 12(1), e0169426.

Article  PubMed  PubMed Central  Google Scholar 

Garey, L., et al. (2019). Health-related quality of life among homeless smokers: Risk and protective factors of latent class membership. Behavioral Medicine, 45(1), 40–51.

Article  PubMed  Google Scholar 

Huang, J., et al. (2023). Health-related quality of life in Chinese medical staff: A latent profile analysis. Frontiers in Public Health. https://doi.org/10.3389/fpubh.2023.1183483

Article  PubMed  PubMed Central  Google Scholar 

Kenzik, K. M., et al. (2015). Health-related quality of life in lung cancer survivors: Latent class and latent transition analysis. Cancer, 121(9), 1520–1528.

Article  PubMed  Google Scholar 

Dyball, S., et al. (2022). Determinants of health-related quality of life across the spectrum of connective tissue diseases using latent profile analysis: Results from the LEAP cohort. Rheumatology. https://doi.org/10.1093/rheumatology/keac680

Article  PubMed Central  Google Scholar 

Grant, R. W., et al. (2020). Use of latent class analysis and k-means clustering to identify complex patient profiles. JAMA Network Open, 3(12), e2029068.

Article  PubMed  PubMed Central  Google Scholar 

Băjenaru, L., et al. (2022). Latent profile analysis for quality of life in older patients. BMC Geriatrics, 22(1), 1–7.

Article  Google Scholar 

Michie, S., Miles, J., & Weinman, J. (2003). Patient-centredness in chronic illness: What is it and does it matter? Patient Education and Counseling, 51(3), 197–206.

Comments (0)

No login
gif