Till Hartlieb 

1   Center for Pediatric Neurology, Neurorehabilitation and Epileptology, Schön Klinik Vogtareuth, Vogtareuth, Germany

2   Institute for Rehabilitation, Transition and Palliation of Neurologically Ill Children, Paracelsus Medical University, Salzburg, Austria

Celina von Stülpnagel

2   Institute for Rehabilitation, Transition and Palliation of Neurologically Ill Children, Paracelsus Medical University, Salzburg, Austria

3   Department for Neuropediatrics, Developmental Neurology and Social Pediatrics, Dr. von Haunersches Children's Hospital, Ludwig-Maximilian-University Munich, Munich, Germany

Kirsten Eschermann

2   Institute for Rehabilitation, Transition and Palliation of Neurologically Ill Children, Paracelsus Medical University, Salzburg, Austria

4   Department of Pediatrics, Paracelsus Medical University, Salzburg, Austria

Lorenz Kiwull 

2   Institute for Rehabilitation, Transition and Palliation of Neurologically Ill Children, Paracelsus Medical University, Salzburg, Austria

4   Department of Pediatrics, Paracelsus Medical University, Salzburg, Austria

5   Institute of Human Genetics, Medical Faculty Otto von Guericke University Magdeburg, Germany

Daniel Weghuber

4   Department of Pediatrics, Paracelsus Medical University, Salzburg, Austria

Gerhard Kluger

1   Center for Pediatric Neurology, Neurorehabilitation and Epileptology, Schön Klinik Vogtareuth, Vogtareuth, Germany

6   Department of Pediatrics, Institute of Rehabilitation, Transition and Palliation of Neurologically Ill Children, Paracelsus Medical University, Salzburg, Austria; Member of the ERN Epicare

Milka Pringsheim

1   Center for Pediatric Neurology, Neurorehabilitation and Epileptology, Schön Klinik Vogtareuth, Vogtareuth, Germany

2   Institute for Rehabilitation, Transition and Palliation of Neurologically Ill Children, Paracelsus Medical University, Salzburg, Austria

7   German Heart Centre Munich, TUM-Klinikum, TU-München, Munich, Germany